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Rehabilitation services for young-onset dementia: examples from high- and low–middle-income countries

Suárez-González, Aida, Savage, Sharon A., Alladi, Suvarna, Amaral-Carvalho, Viviane, Arshad, Faheem, Camino, Julieta, Caramelli, Paulo, Comas-Herrera, Adelina ORCID: 0000-0002-9860-9062, Cook, Julia, Cooper, Claudia, García Díaz, Laura, Grasso, Stephanie M., Jokel, Regina, Lavoie, Monica, León, Tomás, Priya, Thomas, Ramos Franco, Teresita, Taylor-Rubin, Cathleen, Townsend, Rosemary, Thöne-Otto, Angelika, Slachevsky, Andrea, Volkmer, Anna, Weidner, Wendy and O’Connor, Claire M.C. (2024) Rehabilitation services for young-onset dementia: examples from high- and low–middle-income countries. International Journal of Environmental Research and Public Health, 21 (6). ISSN 1661-7827

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Identification Number: 10.3390/ijerph21060790

Abstract

The WHO Dementia Global Action Plan states that rehabilitation services for dementia are required to promote health, reduce disability, and maintain quality of life for those living with dementia. Current services, however, are scarce, particularly for people with young-onset dementia (YOD). This article, written by an international group of multidisciplinary dementia specialists, offers a three-part overview to promote the development of rehabilitation services for YOD. Firstly, we provide a synthesis of knowledge on current evidence-based rehabilitative therapies for early-onset Alzheimer’s disease (EOAD), behavioural variant frontotemporal dementia (bvFTD), primary progressive aphasia (PPA), and posterior cortical atrophy (PCA). Secondly, we discuss the characteristics of rehabilitation services for YOD, providing examples across three continents for how these services can be embedded in existing settings and the different roles of the rehabilitation multidisciplinary team. Lastly, we conclude by highlighting the potential of telehealth in making rehabilitation services more accessible for people with YOD. Overall, with this paper, we aim to encourage clinical leads to begin introducing at least some rehabilitation into their services, leveraging existing resources and finding support in the collective expertise of the broader multidisciplinary dementia professional community.

Item Type: Article
Additional Information: © 2024 The Author(s)
Divisions: Personal Social Services Research Unit
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Date Deposited: 12 Jul 2024 10:18
Last Modified: 12 Jul 2024 16:03
URI: http://eprints.lse.ac.uk/id/eprint/124218

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