Rajagopalan, Jayeeta, Freeman, Emily 
ORCID: 0000-0001-9396-1350, Hurzuk, Saadiya, Thomas, Priya Treesa, Pattabiraman, Meera, Ramasamy, Narendhar and Alladi, Suvarna
(2022)
A qualitative exploration of the economics costs associated with unpaid care for persons with dementia in India.
In: 35th Global Conference of Alzheimer’s Disease International: New horizons in dementia: building on hope, 2022-06-09 - 2022-06-11, London + Online, United Kingdom, GBR.
Abstract
Home-based care provided by families is the cornerstone of dementia care in India, as elsewhere. While very few paid-for care (home- and institution-based) services is available to those who can afford it, there is no coordinated formal long-term care provision. However, limited evidence exists on the economic impact of providing such unpaid care to persons with dementia in India. As part of a wider study examining the costs and consequences of unpaid care in dementia under the Strengthening Responses to Dementia and Developing Countries (STRiDE) project, this paper will explore economic costs and resultant consequences associated with providing care for persons with dementia in South India. A series of remote, inductive in-depth interviews (N=55) were conducted between March and September 2021 with 24 family caregivers of persons with dementia who had accessed services provided by the Alzheimer’s and Related Disorders Society of India, Hyderabad or the National Institute of Mental Health and Neuroscience, Bangalore. Initial assessment suggested caregivers and their families were of low and middle income. Framework Analysis will be conducted to identify financial costs, both direct (out-of-pocket costs such as expenses associated with consultations, investigations, medications) and indirect (e.g. loss of wage), associated with caregiving for dementia in India. This post-fieldwork analysis will be completed by February 2022. The range as well as the nature of these costs will be summarised in order to aid further research that can offer more large-scale quantifiable information on dementia associated caregiving costs.
| Item Type: | Conference or Workshop Item (Paper) |
|---|---|
| Official URL: | https://www.alzint.org/what-we-do/adi-conference/a... |
| Additional Information: | © 2022 The Authors |
| Divisions: | Personal Social Services Research Unit |
| Subjects: | R Medicine > RA Public aspects of medicine H Social Sciences > HV Social pathology. Social and public welfare. Criminology H Social Sciences > HQ The family. Marriage. Woman |
| Date Deposited: | 13 May 2024 08:18 |
| Last Modified: | 12 Jul 2024 08:27 |
| URI: | http://eprints.lse.ac.uk/id/eprint/123024 |
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