Accessing dementia care in Brazil: an analysis of case vignettes

Figueiredo Da Mata, Fabiana Araújo, Oliveira, Déborah, Mateus, Elaine, Franzon, Ana Carolina Arruda, Godoy, Carolina, Salcher-Konrad, Maximilian ORCID: 0000-0002-5628-5266, De-Poli, Chiara ORCID: 0000-0002-1879-553X, Comas-Herrera, Adelina ORCID: 0000-0002-9860-9062, Ferri, Cleusa P and Lorenz-Dant, Klara (2023) Accessing dementia care in Brazil: an analysis of case vignettes. Dementia. ISSN 1471-3012

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Abstract

Background and Objectives Despite the rapid increase in the number of people living with dementia in Brazil, dementia care is limited. This study describes how people living with dementia and their carers access care, treatment, and support, and identifies what characteristics are likely to enable or prevent access. Research Design and Methods We created 10 vignettes to illustrate fictitious but realistic scenarios involving people living with dementia in Brazil. The vignettes explore a combination of socioeconomic and demographic variables. They were completed using an in-depth desk review of the dementia care landscape in Brazil; a Strengths, Opportunities, Weaknesses, and Threats (SWOT) analysis of the desk review; and expert knowledge. The analysis focused on identifying common sources of service provision, barriers of access to care and support, and specific issues experienced by some population groups. Findings Access to a dementia diagnosis, care, and support for people living with dementia in Brazil is limited. Demographic and socio-economic circumstances play a role in determining the type of services to which a person might have access. Poor knowledge about dementia, lack of capacity in the health system, and lack of formal long-term care support are among the identified barriers to accessing timely diagnosis, care, and support in the country. Discussion and Implications Understanding the barriers and facilitators of access to diagnosis, treatment, and support for people with dementia and families with different demographic and socioeconomic characteristics is crucial for designing dementia policies that are context-specific and responsive to the care needs of different socioeconomic groups in Brazil.

Item Type:	Article
Official URL:	https://journals.sagepub.com/home/DEM
Additional Information:	© 2023 Sage.
Divisions:	Care Policy and Evaluation Centre Social Policy
Subjects:	R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Date Deposited:	22 May 2023 15:30
Last Modified:	12 Dec 2024 03:44
URI:	http://eprints.lse.ac.uk/id/eprint/119227

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