Items where Author is "Van Groenendael, Stephanie"

Article

Van Groenendael, Stephanie, Giacovazzi, Luca, Davison, Fabian, Holtkemper, Oliver, Huang, Zexin, Wang, Qiaoying, Parkinson, Kay, Barrett, Timothy and Geberhiwot, Tarekegn (2015) High quality, patient centred andcoordinated care for Alstrom syndrome: amodel of care for an ultra-rare disease. Orphanet Journal of Rare Diseases, 10 (149). ISSN 1750-1172