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Understanding the quality of life of family carers of people with dementia: development of a new conceptual framework

Daley, Stephanie, Murray, Joanna, Farina, Nicolas, Page, Thomas E., Brown, Anna, Basset, Thurstine, Livingston, Gill, Bowling, Ann, Knapp, Martin and Banerjee, Sube (2019) Understanding the quality of life of family carers of people with dementia: development of a new conceptual framework. International Journal of Geriatric Psychiatry, 34 (1). pp. 79-86. ISSN 0885-6230

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Identification Number: 10.1002/gps.4990

Abstract

Background: Dementia is a major global health and social care challenge, and family carers are a vital determinant of positive outcomes for people with dementia. This study's aim was to develop a conceptual framework for the Quality of Life (QOL) of family carers of people with dementia. Methods: We studied family carers of people with dementia and staff working in dementia services iteratively using in‐depth individual qualitative interviews and focus groups discussions. Analysis used constant comparison techniques underpinned by a collaborative approach with a study‐specific advisory group of family carers. Results: We completed 41 individual interviews with 32 family carers and nine staff and two focus groups with six family carers and five staff. From the analysis, we identified 12 themes that influenced carer QOL. These were organised into three categories focussing on person with dementia, carer, and external environment. Conclusions: For carers of people with dementia, the QOL construct was found to include condition‐specific domains which are not routinely considered in generic assessment of QOL. This has implications for researchers, policy makers, and service providers in addressing and measuring QOL in family carers of people with dementia.

Item Type: Article
Official URL: https://onlinelibrary.wiley.com/journal/10991166
Additional Information: © 2018 The Authors
Divisions: Social Policy
Subjects: H Social Sciences > HQ The family. Marriage. Woman
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Sets: Departments > Social Policy
Date Deposited: 22 Oct 2018 14:41
Last Modified: 14 Aug 2019 23:10
URI: http://eprints.lse.ac.uk/id/eprint/90475

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