Insights into the hepatocellular carcinoma patient journey: results of the first global quality of life survey

Gill, Jennifer, Baiceanu, Andrei, Clark, Paul J, Langford, Andrew, Latiff, Julianah, Yang, Pei-Ming, Yoshida, Eric M and Kanavos, Panos ORCID: 0000-0001-9518-3089 (2018) Insights into the hepatocellular carcinoma patient journey: results of the first global quality of life survey. Future Oncology, 14 (17). pp. 1701-1710. ISSN 1479-6694

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Abstract

Aim: To better understand the hepatocellular carcinoma (HCC) patient journey, we conducted a patient survey across 13 countries. Methods: The survey included closed- and open-ended questions developed using an iterative process to gather information on demographics, diagnosis and treatment. Patients self-selected or were directed to the online survey by their doctor. Results: A total of 256 patients completed the survey. More than two-thirds (68%) felt they did not receive enough information about HCC at diagnosis. Treatments included oral anticancer therapy, transarterial chemoembolization (TACE), and selective internal radiation therapy (SIRT). A total of 81% receiving sorafenib, 45% receiving SIRT and 32% receiving TACE reported impaired quality-of-life (QoL). A total of 42, 19 and 0% of patients using sorafenib rated their current QoL as ‘poor’, ‘good’ and ‘excellent’, respectively; compared with SIRT (22, 33 and 6%) or TACE (11, 37 and 13%). Conclusion: Most patients with HCC require additional accessible information. People with incurable HCC require treatments that preserve QoL.

Item Type:	Article
Official URL:	https://www.futuremedicine.com/journal/fon
Additional Information:	© 2018 Future Medicine
Divisions:	Health Policy
Subjects:	R Medicine > RA Public aspects of medicine
Date Deposited:	18 Oct 2018 15:46
Last Modified:	01 Oct 2025 06:33
URI:	http://eprints.lse.ac.uk/id/eprint/90453

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