Cookies?
Library Header Image
LSE Research Online LSE Library Services

Service user and caregiver involvement in mental health system strengthening in low- and middle-income countries: a cross-country qualitative study

Lempp, H. and Abayneh, S. and Gurung, D. and Kola, L. and Abdulmalik, J. and Evans-Lacko, Sara and Semrau, M. and Alem, A. and Thornicroft, G. and Hanlon, C. (2018) Service user and caregiver involvement in mental health system strengthening in low- and middle-income countries: a cross-country qualitative study. Epidemiology and Psychiatric Sciences, 27 (01). pp. 29-39. ISSN 2045-7960

[img]
Preview
Text - Published Version
Available under License Creative Commons Attribution.

Download (263kB) | Preview

Identification Number: 10.1017/S2045796017000634

Abstract

The aims of this paper are to: (i) explore the experiences of involvement of mental health service users, their caregivers, mental health centre heads and policy makers in mental health system strengthening in three low- and middle-income countries (LMICs) (Ethiopia, Nepal and Nigeria); (ii) analyse the potential benefits and barriers of such involvement; and (iii) identify strategies required to achieve greater service user and caregiver participation. A cross-country qualitative study was conducted, interviewing 83 stakeholders of mental health services. Our analysis showed that service user and caregiver involvement in the health system strengthening process was an alien concept for most participants. They reported very limited access to direct participation. Stigma and poverty were described as the main barriers for involvement. Several strategies were identified by participants to overcome existing hurdles to facilitate service user and caregiver involvement in the mental health system strengthening process, such as support to access treatment, mental health promotion and empowerment of service users. This study suggests that capacity building for service users, and strengthening of user groups would equip them to contribute meaningfully to policy development from informed perspectives. Involvement of service users and their caregivers in mental health decision-making is still in its infancy in LMICs. Effective strategies are required to overcome existing barriers, for example making funding more widely available for Ph.D. studies in participatory research with service users and caregivers to develop, implement and evaluate approaches to involvement that are locally and culturally acceptable in LMICs.

Item Type: Article
Official URL: https://www.cambridge.org/core/journals/epidemiolo...
Additional Information: © 2017 Cambridge University Press © CC BY 4.0
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Sets: Research centres and groups > Personal Social Services Research Unit (PSSRU)
Date Deposited: 15 Feb 2018 13:03
Last Modified: 20 Feb 2018 15:57
URI: http://eprints.lse.ac.uk/id/eprint/86793

Actions (login required)

View Item View Item

Downloads

Downloads per month over past year

View more statistics