Library Header Image
LSE Research Online LSE Library Services

Services and support for people with early-onset dementia and their unpaid carers

Perkins, Margaret (2013) Services and support for people with early-onset dementia and their unpaid carers. LSE Health and Social Care (29 Apr 2013). Website.

PDF - Published Version
Download (112kB) | Preview


While dementia is usually associated with older people, it can affect younger people. If a diagnosis is made under age 65, this is referred to as so called early-onset or young-onset dementia. One estimate suggested that there were 15,000 younger people with dementia in the UK in 2007. This is likely to be a major underestimate by up to three times because of the way the data relies on referrals to services (Knapp and Prince 2007). Given the different place in the life course with family, financial and work responsibilities, the impacts can be particularly devastating and life changing for the whole family. A recent exploratory study undertaken in PSSRU investigated the current picture ‘on the ground’ from two differing perspectives: experiences of younger people diagnosed with a dementia and their unpaid carers, and of professionals (health, social and voluntary sector) in providing services and support for this group. We found that service availability and care pathways varied with degree of local service specialisation, and that client satisfaction was greatest where the family had an ongoing and supportive relationship with their local specialist clinical team. Financial constraints and low case numbers are the main barriers to establishing more specialist services.

Item Type: Online resource (Website)
Official URL:
Additional Information: © 2013 The Author
Divisions: LSE
Subjects: H Social Sciences > HV Social pathology. Social and public welfare. Criminology
J Political Science > JF Political institutions (General)
J Political Science > JN Political institutions (Europe) > JN101 Great Britain
R Medicine > RA Public aspects of medicine
Date Deposited: 18 May 2017 12:14
Last Modified: 15 Sep 2023 19:08

Actions (login required)

View Item View Item


Downloads per month over past year

View more statistics