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Instruments measuring the disease-specific quality of life of family carers of people with neurodegenerative diseases: a systematic review

Page, Thomas E and Farina, Nicolas and Brown, Anna and Daley, Stephanie and Bowling, Ann and Basset, Thurstine and Livingston, Gill and Knapp, Martin and Murray, Joanna and Banerjee, Sube (2017) Instruments measuring the disease-specific quality of life of family carers of people with neurodegenerative diseases: a systematic review. BMJ Open, 7 (e01361). pp. 1-11. ISSN 2044-6055

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Identification Number: 10.1136/bmjopen-2016-013611

Abstract

Neurodegenerative diseases, such as dementia, have a profound impact on those with the conditions and their family carers. Consequently, the accurate measurement of family carers' quality of life (QOL) is important. Generic measures may miss key elements of the impact of these conditions, so using disease-specific instruments has been advocated. This systematic review aimed to identify and examine the psychometric properties of disease-specific outcome measures of QOL of family carers of people with neurodegenerative diseases (Alzheimer's disease and other dementias; Huntington's disease; Parkinson's disease; multiple sclerosis; and motor neuron disease).

Item Type: Article
Official URL: http://bmjopen.bmj.com/
Additional Information: © 2017 The Authors © CC BY-NC 4.0
Divisions: Social Policy
Personal Social Services Research Unit
Subjects: B Philosophy. Psychology. Religion > BF Psychology
H Social Sciences > HM Sociology
R Medicine > RA Public aspects of medicine
Sets: Departments > Social Policy
Research centres and groups > LSE Health and Social Care
Research centres and groups > Personal Social Services Research Unit (PSSRU)
Research centres and groups > NIHR School for Social Care Research
Date Deposited: 04 Apr 2017 08:55
Last Modified: 04 Apr 2017 08:57
Projects: 234ASPG14017
Funders: Alzheimer’s Society Project
URI: http://eprints.lse.ac.uk/id/eprint/72251

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