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Clinical effectiveness of a skills training intervention for caregivers in improving patient and caregiver health following in-patient treatment for severe anorexia nervosa: pragmatic randomised controlled trial

Hibbs, Rebecca, Magill, Nicholas, Goddard, Elizabeth, Rhind, Charlotte, Raenker, Simone, Macdonald, Pamela, Todd, Gill, Arcelus, Jon, Morgan, John, Beecham, Jennifer, Schmidt, Ulrike, Landau, Sabine and Treasure, Janet (2015) Clinical effectiveness of a skills training intervention for caregivers in improving patient and caregiver health following in-patient treatment for severe anorexia nervosa: pragmatic randomised controlled trial. BJPsych Open, 1 (1). pp. 56-66. ISSN 2056-4724

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Identification Number: 10.1192/bjpo.bp.115.000273

Abstract

Background Families express a need for information to support people with severe anorexia nervosa. Aims To examine the impact of the addition of a skills training intervention for caregivers (Experienced Caregivers Helping Others, ECHO) to standard care. Method Patients over the age of 12 (mean age 26 years, duration 72 months illness) with a primary diagnosis of anorexia nervosa and their caregivers were recruited from 15 in-patient services in the UK. Families were randomised to ECHO (a book, DVDs and five coaching sessions per caregiver) or treatment as usual. Patient (n=178) and caregiver (n=268) outcomes were measured at discharge and 6 and 12 months after discharge. Results Patients with caregivers in the ECHO group had reduced eating disorder psychopathology (EDE-Q) and improved quality of life (WHO-Quol; both effects small) and reduced in-patient bed days (7–12 months post-discharge). Caregivers in the ECHO group had reduced burden (Eating Disorder Symptom Impact Scale, EDSIS), expressed emotion (Family Questionnaire, FQ) and time spent caregiving at 6 months but these effects were diminished at 12 months. Conclusions Small but sustained improvements in symptoms and bed use are seen in the intervention group. Moreover, caregivers were less burdened and spent less time providing care. Caregivers had most benefit at 6 months suggesting that booster sessions, perhaps jointly with the patients, may be needed to maintain the effect. Sharing skills and information with caregivers may be an effective way to improve outcomes. This randomised controlled trial (RCT) was registered with Current Controlled Trials ISRCTN06149665.

Item Type: Article
Official URL: http://bjpo.rcpsych.org/
Additional Information: © 2015 The Royal College of Psychiatrists © CC BY-NC-ND 4.0
Divisions: Social Policy
Personal Social Services Research Unit
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Sets: Departments > Social Policy
Research centres and groups > Personal Social Services Research Unit (PSSRU)
Date Deposited: 01 Sep 2015 14:09
Last Modified: 23 Feb 2019 00:12
Projects: RP-PG-0606-1043
Funders: National Institute for Health Research (NIHR)
URI: http://eprints.lse.ac.uk/id/eprint/63369

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