Thomas, Priya Treesa, Freeman, Emily 
ORCID: 0000-0001-9396-1350, Rajagopalan, Jayeeta ORCID: 0000-0002-1442-9786, Hurzuk, Saadiya, Pattabiraman, Meera, Ramasamy, Narendhar and Alladi, Suvarna
(2022)
Emotional consequences of caregivers providing unpaid care for persons with dementia in India: a qualitative study.
In: 35th Global Conference of Alzheimer’s Disease International: New horizons in dementia: building on hope, 2022-06-09 - 2022-06-11, London + Online, United Kingdom, GBR.
Abstract
In Indian society, it is often considered the responsibility of children to provide care for their parents as they age. As a result, care for the vast majority of people living with dementia is provided by families at their own homes (ARDSI, 2010). As in other lower resource settings, the absence of an organized formal long-term care system to support persons with dementia and their families is expected to place significant stress on families to provide the best care possible. Since dementia care can require almost full-time availability at home, this has been reported to affect physical and psychological health of caregivers (Srivastava et al., 2016). An understanding of the different components of stress that could arise from care provision is needed to be able to design appropriate interventions to mitigate the distress. We interviewed twenty-four caregivers using semi-structured interviews (N=55). The interviews were conducted remotely with the aid of a series of inductive and emergent topic guides. This paper will explore the emotional consequences of providing unpaid care experienced by these caregivers. It will consider the changes in career and personal goals that caregivers experienced and the impact of this on their understandings of the care they provide.
| Item Type: | Conference or Workshop Item (Poster) |
|---|---|
| Official URL: | https://www.alzint.org/what-we-do/adi-conference/a... |
| Additional Information: | © 2022 The Authors |
| Divisions: | Care Policy and Evaluation Centre |
| Subjects: | H Social Sciences > HQ The family. Marriage. Woman B Philosophy. Psychology. Religion > BF Psychology R Medicine > RA Public aspects of medicine H Social Sciences > HV Social pathology. Social and public welfare. Criminology |
| Date Deposited: | 13 May 2024 08:09 |
| Last Modified: | 01 Nov 2024 04:08 |
| URI: | http://eprints.lse.ac.uk/id/eprint/123022 |
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