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Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers

Read, Sanna, Hicks, Ben, Budden, Emily, Douglass, Jacob, Grahamslaw, Amanda, Herrero, Elena, Joseph, Gregory, Kirkup, Christine, Pusey, Martha, Russell, Alice, Sondh, Harsharon K., Sondh, Sharon, Storey, Bryony, Towson, Georgia, Baxter, Kate, Birks, Yvonne, Brayne, Carol, Colclough, Carmen, Dangoor, Margaret, Dixon, Josie ORCID: 0000-0003-4772-6450, Donaghy, Paul, Gridley, Kate, Harris, Peter R., Hu, Bo, King, Derek ORCID: 0000-0002-2408-4558, Knapp, Martin ORCID: 0000-0003-1427-0215, Miles, Eleanor, Mueller, Christoph, Perach, Rotem, Robinson, Louise, Rusted, Jennifer M., Thomas, Alan J., Wittenberg, Raphael ORCID: 0000-0003-3096-2721 and Banerjee, Sube (2024) Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers. Age and ageing, 53 (1). ISSN 0002-0729

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Identification Number: 10.1093/ageing/afad233


INTRODUCTION: Few studies have longitudinally mapped quality of life (QoL) trajectories of newly diagnosed people with dementia and their carers, particularly during coronavirus disease-2019 (COVID-19). METHODS: In a UK cohort study, 261 newly diagnosed people with dementia and 206 family carers were assessed prior to the pandemic (July 2019-March 2020), followed up after the first lockdown (July-October 2020) and then again a year and 2 years later. Latent growth curve modelling examined the level and change of QoL over the four time-points using dementia-specific QoL measures (DEMQOL and C-DEMQOL). RESULTS: Despite variations in individual change scores, our results suggest that generally people with dementia maintained their QoL during the pandemic and experienced some increase towards the end of the period. This contrasted with carers who reported a general deterioration in their QoL over the same period. 'Confidence in future' and 'Feeling supported' were the only carer QoL subscales to show some recovery post-pandemic. DISCUSSION: It is positive that even during a period of global disruption, decline in QoL is not inevitable following the onset of dementia. However, it is of concern that carer QoL declined during this same period even after COVID-19 restrictions had been lifted. Carers play an invaluable role in the lives of people with dementia and wider society, and our findings suggest that, post-pandemic, they may require greater support to maintain their QoL.

Item Type: Article
Official URL:
Additional Information: © 2024 The Authors
Divisions: Personal Social Services Research Unit
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
H Social Sciences > HV Social pathology. Social and public welfare. Criminology
Date Deposited: 05 Oct 2023 13:45
Last Modified: 11 Jul 2024 04:15

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