Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic

Colclough, Carmen, Miles, Eleanor, Rusted, Jennifer, Perach, Rotem, Hicks, Ben, Dixon, Josie ORCID: 0000-0003-4772-6450, Dangoor, Margaret, Gridley, Kate, Birks, Yvonne, Donaghy, Paul, Mcardle, Riona, Moseley, Elen, Sondh, Harsharon K. and Banerjee, Sube (2023) Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic. Dementia, 22 (6). 1205 - 1226. ISSN 1471-3012

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Abstract

Emotional wellbeing of family carers and people with dementia is associated with not only how each individual copes with stress and conflict, but also by how they cope together. Finding ways to positively cope together was particularly important during COVID-19 lockdown restrictions, when other avenues of emotional support were less available. We explored how carers experienced and used emotion-focused dyadic coping styles during the COVID-19 pandemic. In-depth qualitative interviews were conducted during the pandemic with 42 family carers, supplemented by quality of life scores collected both pre- and during the pandemic and household status. Abductive thematic analysis identified five styles of emotion-focused dyadic coping: common, supportive, hostile, disengaged avoidance and protective. The COVID-19 pandemic left many dyads unsupported. While many carers adapted, reporting increases in quality of life and enjoying the extra time with the person with dementia, others experienced dyadic conflict and reductions in quality of life. This variation was associated with dyadic coping styles, including challenges in using ‘positive’ styles and the protective use of ‘negative’ disengaged avoidance in the right situations. Dyadic coping styles also differed as a function of whether the dyad lived together. As many people with dementia are supported by an informal carer, considering how they cope together could help us to better support them. We make suggestions for dyadic interventions tailored by co-residency status that could help dyads identify and communicate coping needs, reconnect following avoidance coping, and replenish their coping resources through social support.

Item Type:	Article
Official URL:	https://journals.sagepub.com/home/DEM
Additional Information:	© 2023 The Authors
Divisions:	Care Policy and Evaluation Centre
Subjects:	H Social Sciences > HQ The family. Marriage. Woman R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Date Deposited:	26 May 2023 14:39
Last Modified:	02 Dec 2024 18:51
URI:	http://eprints.lse.ac.uk/id/eprint/119275

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