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A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers

Hicks, Ben, Read, Sanna, Hu, Bo, Wittenberg, Raphael ORCID: 0000-0003-3096-2721, Grahamslaw, Amanda, Karim, Anomita, Martin, Evelyn, Nuzum, Eleanor, Reichental, Jacob, Russell, Alice, Siddle, Elaine, Storey, Bryony, Tipping, Eva, Baxter, Kate, Birks, Yvonne, Brayne, Carol, Brimblecombe, Nicola ORCID: 0000-0002-6147-5726, Dangoor, Margaret, Dixon, Josie ORCID: 0000-0003-4772-6450, Gridley, Kate, Harris, Peter R., Knapp, Martin ORCID: 0000-0003-1427-0215, Miles, Eleanor, Perach, Rotem, Robinson, Louise, Rusted, Jennifer, Stewart, Rob, Thomas, Alan J. and Banerjee, Sube (2022) A cohort study of the impact of COVID-19 on the quality of life of people newly diagnosed with dementia and their family carers. Alzheimer's and Dementia: Translational Research and Clinical Interventions, 8 (1). ISSN 2352-8737

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Identification Number: 10.1002/trc2.12236


Introduction: COVID-19 has impacted people with dementia and their family carers, yet little is known about effects on overall quality of life. Methods: In a UK cohort study, pre- and post-pandemic data were collected from 114 carers and 93 recently diagnosed people with dementia. Latent growth curve modeling examined change in quality of life. Results: Carers reported significant decline in quality of life, although no change was demonstrated by people with dementia. In multivariable analyses, higher levels of cognitive impairment, deprivation, study site, and lower number of memory clinic contacts were associated with greater decline in carer quality of life. Discussion: Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post-diagnostic care.

Item Type: Article
Additional Information: © 2022 The Author(s).
Divisions: Personal Social Services Research Unit
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
H Social Sciences
Date Deposited: 20 Jan 2023 15:54
Last Modified: 23 Jun 2024 23:30

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