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Active inclusion of people living with dementia in planning for dementia care and services in low- and middle-income countries

Breuer, Erica, Freeman, Emily ORCID: 0000-0001-9396-1350, Alladi, Suvarna, Breedt, Marinda, Govia, Ishtar, López-ortega, Mariana, Musyimi, Christine, Oliveira, Déborah, Pattabiraman, Meera, Sani, Tara Puspitarini, Schneider, Marguerite, Swaffer, Kate, Taylor, Dubhglas, Taylor, Eileen and Comas-herrera, Adelina ORCID: 0000-0002-9860-9062 (2022) Active inclusion of people living with dementia in planning for dementia care and services in low- and middle-income countries. Dementia, 21 (2). 380 - 395. ISSN 1471-3012

[img] Text (Breuer et al. (2021) Active inclusion of people living with dementia in planning of dementia care and services in LMIC) - Accepted Version
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Identification Number: 10.1177/14713012211041426

Abstract

Involving people living with dementia in service design and planning has become more common in high-income countries. It remains rare in low- and middle-income countries where two-thirds of the world’s people with dementia live. In this commentary article, we explore the barriers to inclusion of people living with dementia in planning in low- and middle-income countries and make a case for the inclusion of people living with dementia in care and service planning. We suggest how this can be done at individual, community or national and state level using the following principles: 1) respecting the rights of people living with dementia to self-determination; 2) valuing people living with dementia’s unique understanding of dementia; 3) creating a culture of active inclusion which creates a space for people living with dementia to participate and 4) ensuring appropriate accommodations are in place to maximise participation.

Item Type: Article
Official URL: https://journals.sagepub.com/home/dem
Additional Information: This work was supported by the UK Research and Innovation’s global challenges research fund (ES/P010938/1). © 2021 SAGE
Divisions: Personal Social Services Research Unit
Subjects: R Medicine > RA Public aspects of medicine
Date Deposited: 13 Sep 2021 13:45
Last Modified: 13 Jun 2022 09:18
URI: http://eprints.lse.ac.uk/id/eprint/111905

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