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DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers (DETERMIND): a protocol paper

Farina, Nicolas, Hicks, ben, Baxter, Kate, Birks, Yvonne, Brayne, Carol, Dangoor, Margaret, Dixon, Josie, Harris, Peter R., Hu, Bo, Knapp, Martin ORCID: 0000-0003-1427-0215, Miles, Eleanor, Perach, Rotem, Read, Sanna, Robinson, Louise, Rusted, Jennifer M., Stewart, Robert, Thomas, Alan, Wittenberg, Raphael and Bannerjee, Sube (2020) DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers (DETERMIND): a protocol paper. International Journal of Geriatric Psychiatry, 35 (3). 290 - 301. ISSN 0885-6230

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Identification Number: 10.1002/gps.5246

Abstract

Objectives: DETERMIND (DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers) is designed to address fundamental, and, as yet unanswered, questions about inequalities, outcomes and costs following diagnosis with dementia. These answers are needed to improve the quality of care and equity of access to care, and therefore the quality of life, of people with dementia and their carers. Method: DETERMIND is a programme of research consisting of seven complementary workstreams (WS) exploring various components that may result in unequal dementia care: WS1: Recruitment and follow-up of the DETERMIND cohort - 900 people with dementia and their carers from three geographically and socially diverse sites within six months following diagnosis, and follow them up for three years. WS2: Investigation of the extent of inequalities in access to dementia care WS3: Relationship between use and costs of services and outcomes WS4: Experiences of self-funders of care WS5: Decision-making processes for people with dementia and carers WS6: Effect of diagnostic stage and services on outcomes WS7: Theory of Change informed strategy and actions for applying the research findings Outcomes: During the life of the programme, analysing baseline results and then follow-up of the DETERMIND cohort over 3 years, we will establish evidence on current services and practice. DETERMIND will deliver novel, detailed data on inequalities in dementia care and what drives positive and negative outcomes and costs for people with dementia and carers, and identify factors that help or hinder living well with dementia.

Item Type: Article
Official URL: https://onlinelibrary.wiley.com/journal/10991166
Additional Information: © 2019 John Wiley & Sons Ltd
Divisions: Methodology
Personal Social Services Research Unit
Health Policy
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
H Social Sciences > HV Social pathology. Social and public welfare. Criminology
Date Deposited: 03 Dec 2019 13:57
Last Modified: 27 Jun 2020 23:25
URI: http://eprints.lse.ac.uk/id/eprint/102752

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