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How should babies who underwent germline genome editing be monitored over the course of their lives?

Thompson, Charis (2019) How should babies who underwent germline genome editing be monitored over the course of their lives? AMA Journal of Ethics. ISSN 2376-6980 (In Press)

[img] Text (How should babies who underwent germline genome editing be monitored over the course of their lives?) - Accepted Version
Pending embargo until 1 January 2100.

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Abstract

I suggest that babies who underwent genome editing should be monitored over the course of their life in three different ways-physical health, mental health, and social issues-with the help of a coordinating practitioner for each type of monitoring. I suggest that anonymised, privacy-protected data be contributed to an international monitoring effort so that safety, efficacy, and such social issues as access, standard of care, disability justice, research and innovation can be coordinated together and across jurisdictions.

Item Type: Article
Additional Information: © 2019 American Medical Association
Divisions: Sociology
Subjects: R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Q Science > QH Natural history > QH426 Genetics
Date Deposited: 10 Jul 2019 16:00
Last Modified: 17 Jul 2019 23:09
URI: http://eprints.lse.ac.uk/id/eprint/101149

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