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How should “CRISPRed” babies be monitored over their life course to promote health equity?

Thompson, Charis (2019) How should “CRISPRed” babies be monitored over their life course to promote health equity? AMA Journal of Ethics, 21 (12). E1036-1041. ISSN 2376-6980

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Identification Number: 10.1001/amajethics.2019.1036.

Abstract

Gene-edited babies who might be born in the future should be monitored over the course of their life. These patients’ physical, mental, and social health monitoring should be coordinated by clinicians in ways that anonymize patients’ data for privacy protection but also allow for national and international aggregate evaluations. Transnational monitoring efforts should focus on safety and efficacy, social and disability justice, what constitutes the standard of care, and how best to promote both access to care and social and genomic research and innovation. In addition, effective and binding mechanisms for stopping or limiting uses of gene editing technology should be developed.

Item Type: Article
Official URL: https://journalofethics.ama-assn.org/home
Additional Information: © 2019 American Medical Association
Divisions: Sociology
Subjects: R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Q Science > QH Natural history > QH426 Genetics
Date Deposited: 10 Jul 2019 16:00
Last Modified: 19 Jan 2020 00:23
URI: http://eprints.lse.ac.uk/id/eprint/101149

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