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Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study

Hunter, C., Fitzpatrick, R., Jenkinson, C., Darlington, A.-S. E., Coulter, A., Forder, Julien and Peters, M. (2015) Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study. BMJ Open, 5 (5). pp. 1-14. ISSN 2044-6055

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Identification Number: 10.1136/bmjopen-2014-006986

Abstract

Objectives To explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure. Design Qualitative semistructured interview study, analysed using a framework approach. Participants and setting Interviews with 31 stakeholders from primary care, secondary care, social care, policy and patient-focused voluntary organisations in England. Results There was broad support for a single PROM that could be used to measure outcomes for patients with any LTCs in any health or social care setting. Interviewees identified three desired uses for a PROM: to improve the quality of individual care; to increase people's engagement in their own care; and to monitor the performance of services. Interviewees felt that a PROM for LTCs should incorporate a mixture of traditional and non-traditional domains, such as functioning, empowerment and social participation, and be codesigned with patients and professional end-users. Stakeholders emphasised the need for a PROM to be feasible for practical implementation at the individual clinical level as a first priority. A number of concerns and potential problems were identified in relation to the application and interpretation of an LTC PROM. Conclusions This study has demonstrated support for a single self-report outcome measure that reflects the priorities of people with LTCs, if such a measure can be shown to be meaningful and useful at the individual level. People with LTCs and professional end-users in health and social care should be involved in the development and evaluation of such a measure.

Item Type: Article
Official URL: http://bmjopen.bmj.com/
Additional Information: ©2015 The Authors
Divisions: Personal Social Services Research Unit
Subjects: H Social Sciences > HV Social pathology. Social and public welfare. Criminology
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Sets: Research centres and groups > Personal Social Services Research Unit (PSSRU)
Date Deposited: 18 Jun 2015 14:22
Last Modified: 20 Feb 2019 11:19
Funders: National Institute for Health Research
URI: http://eprints.lse.ac.uk/id/eprint/62357

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