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Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study

Clare, Linda, Nelis, Sharon M., Quinn, Catherine, Martyr, Anthony, Henderson, Catherine, Hindle, John V., Jones, Ian R., Jones, Roy W., Knapp, Martin ORCID: 0000-0003-1427-0215, Kopelman, Michael D., Morris, Robin G., Pickett, James A., Rusted, Jennifer M., Savitch, Nada M., Thom, Jeanette M. and Victor, Christina R. (2014) Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study. Health and Quality of Life Outcomes, 12 (1). p. 164. ISSN 1477-7525

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Identification Number: 10.1186/s12955-014-0164-6


Background:- Enabling people with dementia and carers to `live well? with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what `living well? means from the perspective of people with dementia and carers. Methods/Design:- Over a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth. Discussion:- The findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.

Item Type: Article
Official URL:
Additional Information: © 2014 The Authors; licensee BioMed Central Ltd.
Divisions: Social Policy
Personal Social Services Research Unit
LSE Health
Subjects: H Social Sciences > HV Social pathology. Social and public welfare. Criminology
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Date Deposited: 08 Dec 2014 11:36
Last Modified: 20 Oct 2021 02:12
Projects: NIHR grant: ES/L001853/1
Funders: UK Economic and Social Research Council (ESRC), National Institute for Health Research (NIHR) - (UK and Wales), Higher Education Funding Council for England, Higher Education Funding Council for Wales, Betsi Cadwaladr University Health Board, North Wales Organisation for Randomised Trials in Health and Social Care, RICE (The Research Institute for the Care of Older People), Bath, South London and Maudsley NHS Foundation Trust; King’s College London, National Institute for Health Research (NIHR) Dementia Biomedical Research Unit at the South London and Maudsley NHS Foundation Trust, Nuffield Foundation, King’s College Hospital, King’s College London, Wellcome Trust, Innovations in Dementia, Alzheimer’s Society

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