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Publics and biobanks: Pan-European diversity and the challenge of responsible innovation

Gaskell, George and Gottweis, Herbert and Starkbaum, Johannes and Gerber, Monica M. and Broerse, Jacqueline and Gottweis, Ursula and Hobbs, Abbi and Helén, Ilpo and Paschou, Maria and Snell, Karoliina and Soulier, Alexandra (2013) Publics and biobanks: Pan-European diversity and the challenge of responsible innovation. European Journal of Human Genetics, 21 (1). pp. 14-20. ISSN 1018-4813

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Identification Number: 10.1038/ejhg.2012.104

Abstract

This article examines public perceptions of biobanks in Europe using a multi-method approach combining quantitative and qualitative data. It is shown that public support for biobanks in Europe is variable and dependent on a range of interconnected factors: people’s engagement with biobanks; concerns about privacy and data security, and trust in the socio-political system, key actors and institutions involved in biobanks. We argue that the biobank community needs to acknowledge the impact of these factors if they are to successfully develop and integrate biobanks at a pan-European level.

Item Type: Article
Official URL: http://dx.doi.org/10.1038/ejhg.2012.104
Additional Information: © 2013 Macmillan Publishers Limited
Subjects: H Social Sciences > H Social Sciences (General)
Sets: Research centres and groups > Director's Management Team
Departments > European Institute
Departments > Methodology
Date Deposited: 12 Mar 2013 10:34
Last Modified: 19 Jun 2014 12:04
Projects: NRF-2010-330-B00169
Funders: Science in Society Programme of the European Commission's FP7, Austrian Genome Project (GEN-AU), National Research Foundation of Korea
URI: http://eprints.lse.ac.uk/id/eprint/49045

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