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Publics and biobanks: Pan-European diversity and the challenge of responsible innovation

Gaskell, George, Gottweis, Herbert, Starkbaum, Johannes, Gerber, Monica M., Broerse, Jacqueline, Gottweis, Ursula, Hobbs, Abbi, Helén, Ilpo, Paschou, Maria, Snell, Karoliina and Soulier, Alexandra (2013) Publics and biobanks: Pan-European diversity and the challenge of responsible innovation. European Journal of Human Genetics, 21 (1). pp. 14-20. ISSN 1018-4813

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Identification Number: 10.1038/ejhg.2012.104


This article examines public perceptions of biobanks in Europe using a multi-method approach combining quantitative and qualitative data. It is shown that public support for biobanks in Europe is variable and dependent on a range of interconnected factors: people’s engagement with biobanks; concerns about privacy and data security, and trust in the socio-political system, key actors and institutions involved in biobanks. We argue that the biobank community needs to acknowledge the impact of these factors if they are to successfully develop and integrate biobanks at a pan-European level.

Item Type: Article
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Additional Information: © 2013 Macmillan Publishers Limited
Divisions: European Institute
Subjects: H Social Sciences > H Social Sciences (General)
Date Deposited: 12 Mar 2013 10:34
Last Modified: 16 May 2024 01:37
Projects: NRF-2010-330-B00169
Funders: Science in Society Programme of the European Commission's FP7, Austrian Genome Project (GEN-AU), National Research Foundation of Korea

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